World Down Syndrome Day

When our son was born with Down Syndrome, the path of our lives changed forever. All our plans and expectations were suddenly put on hold and our lives became a rollercoaster of doctors and hospital appointments and therapy sessions.  

While we reeled from the shock of being thrown into this new world, we had countless well-meaning professionals welcoming us to Holland. If you know, you know. If you don’t, it’s a poem about how you always wanted to go to Italy, but your plane went off course and landed in Holland. You can Google it yourself because I hate it, it’s called Welcome to Holland.  

Over the years, as we watched our son struggle to do what comes so easily to other children, we’ve learned to celebrate the small things. We’ve come to appreciate the joy of an ordinary life.  

I’ve been to Italy and it was great. I’ve been to Holland too and that was great as well. But do you know what? Right here is pretty damned fantastic. 

Similar Posts

  • |

    And breathe

    It’s been a lot. Christmas, a birthday, everyone has had coughs and colds and sore throats. We’ve all been home for too long. We’ve done our best to get out in the fresh air every day, but the weather has been shite and it has been a chore.   I breathed a huge sigh of relief…

  • So Long, M’F*kers

    These teeth. They have been with us for a very long time.    My son didn’t have any teeth at all until he was almost 3 years old. His first tooth was a big, back molar. Then, gradually, teeth started popping up all over the place, some at the back, an odd one near the…

  • Something’s brewing

    With a non-verbal child you become accustomed to watching out for signs. Sé feels pain the same as everybody else, but he doesn’t know how to express it, so we watch him and mind him and do our best. Right now, he’s got something brewing. How do I know? Because he’s being nice and helpful….

  • Unwanted Gifts 

    A lifetime ago in a faraway land, I had these lovely neighbours from Brazil. She was an incredibly beautiful ballerina, and he was a sound engineer with a face made for radio. Using a mishmash of English, Portuguese and French, we became great friends, bonding over our love of music.   There’s an album by…